Palliative and End of Life Care: Improving Partnership Working

56,000 people in Scotland die every year, with 46,000 people needing some form of palliative or end of life care. However, it is thought that a quarter of these people do not get the care that they deserve.

The context

The Scottish Government has committed to a bold ambition to ensure that, by 2021, everyone who needs palliative care in Scotland has access to it under the Strategic Framework for Action on Palliative and End of Life Care. Yet, stakeholders argue that while Scotland has improved services for end of life care, a substantial gap needs to be bridged if the Scottish Government is to deliver a vision of care for all.

The pressures of an ageing population require additional work to ensure that health and social care services have sufficient resources, data and finance to deliver quality, accessible and robust care. Moreover, end of life care also requires a range of decisions: hospice scare, end-of-life planning, financial arrangements, medical experimentation and patient rights to self-determination.

The event

Attend this Holyrood briefing on the 7th of February for an update on the latest policy surrounding palliative and end of life care in Scotland. We will bring expert speakers and delegates together to examine the challenges faced by the health and social care workforce, demands on resources, how to place the patient at the centre of care and how to ensure that patients and families are receiving the best level of care during the last stage of their lives.

Confirmed Speakers

  • Mark Hazelwood, Chief Executive, Scottish Partnership for Palliative Care
  • Richard Meade, Head of Policy and Public Affairs, Marie Curie
  • Tracy Smith, Practice Development Facilitator, Marie Curie Hospice Edinburgh
  • Dr Rev Hamilton Inbadas, Research Associate (Wellcome Trust), the University of Glasgow
  • Sandra Campbell, Macmillan Nurse Consultant for Cancer and Palliative Care, NHS Forth Valley 
  • Michelle Church, Improvement Advisor, Healthcare Improvement Scotland 
  • Becca Gartherum, Policy and Research Manager, Scottish Care
  • Mairi O'Keefe, Chief Executive, Leuchie House
  • Sue Hogg, Director of Children and Families, CHAS 

Key issues to be addressed

  • Understanding the current policy landscape surrounding end of life care in Scotland
  • Greater openness about death, dying and bereavement for patients and families
  • Understanding the role of health and social care services in delivering person-centred care in the final phase of life
  • Challenges for the health and social care workforce to adapt to rising demand
  • Nurturing and empowering patients to make sound decisions: planning, financial arrangements and medical experimentation
  • Sharing and learning from good practice from across the sector

 

Agenda*

09:30    Registration and Refreshments

10:00    Welcome and Introduction from Chair

            Jennifer Trueland, Health and Social Care Journalist

10:05   Session 1: Policy and Overview

10.05  The Sense of an Ending - An Overview of Palliative Care in Scotland

             Mark Hazelwood, CEO, Scottish Partnership for Palliative Care

10.30   Non-Malignant Palliative Care

  • Basing palliative care on need rather than diagnosis
  • Overcoming the barriers to expansion of palliative care for non-malignant diseases
  • Caring for an empowering patients with non-malignant diseases

           Mairi O'Keefe MBE, Chief Executive, Leuchie House 

10.40   A Description of the Population in Need of Palliative Care

  • Introduction of the 'Care at the End of Life' study
  • Description of the population in need of palliative care and changes between 2001 and 2011
  • Spotlight on some patient groups

Anna Schneider, Research Fellow, Edinburgh Napier University and Dr Iain Atherton

11:00    Questions and Discussion

11:20    Refreshments and Networking

11:40   Session 2: Empowering Patients throughout Palliative Care

11:40   Partnership Working in Palliative Care 

  • The role of third and independent sector in palliative care provision 
  • Impact of demographic changes on service provision and support

           Richard Meade, Head of Policy and Public Affairs, Marie Curie

12:00   Case Study: Adopting a Person-Centred Approach in Palliative Care

  • Adopting a person-centred approach where individuals are treated with dignity and respect

           Tracy Smith, Practice Development Facilitator, Marie Curie Hospice Edinburgh

12:20   Scottish Atlas of Palliative Care

  • Development and current organisation of palliative care in Scotland 

           Dr Rev Hamilton Inbadas, Research Associate (Wellcome Trust), the University of Glasgow

12.40   Questions and Discussion

13.00    Lunch and Networking

13:45   Session 3: Improving Palliative and End of Life Care

13:45   Improving Identification and Care Coordination 

  • Provision of high quality inpatient care in the final stage of life 
  • Placing the individual at the centre of their care until the end 
  • Sufficient and well-supported bereavement follow-up 

           Sandra Campbell, National Clinical Lead (Nursing), Health Improvement Scotland and Michelle Church, Improvement Advisor, Healthcare Improvement Scotland

14.15   Delivering Palliative and End of Life Care in a Care Home Setting

            Becca Gatherum, Policy and Research Manager, Scottish Care

14.35   Palliative and End of Life Care for Children

  • Overview of children’s palliative care in Scotland
  • Current strengths and challenges
  • What does the future look like - Working together to deliver on commitment four 'Support and promote the further development of holistic palliative care for the 0-25 years age group'

            Sue Hogg, Director of Families and Children, CHAS 

14:50    Questions and Discussion

15:20    Closing Remarks from Chair

15:30    Close of Event

*Agenda subject to change

Venue

COSLA, Verity House, 19 Haymarket Yards, Edinburgh | Map

Costs

Delegate rates (excluding VAT):

  • Discounted rate: 1 place £145 + VAT (Voluntary / charitable organisations with an annual income of less than £1m)
  • Reduced rate: 1 place £245 + VAT | 2+ places £195 + VAT (Central government departments and agencies, local authorities, universities, colleges, NHS, police, professional associations and voluntary / charitable organisations with an annual income over £1m)
  • Full rate: 1 place £295 + VAT | 2+ places £245 + VAT (Commercial organisations e.g. plc, Ltd, LLP)

For all event enquiries please email enquiries@holyrood.com or call 0131 285 1635.

Dates
7 February 2018

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